(03) 7003 8588 contact@medistays.com.au
Travelling interstate for life-saving liver surgery: the journey of a young Tasmanian patient

Travelling interstate for life-saving liver surgery: the journey of a young Tasmanian patient

Nikki’s 34-year-old daughter Samantha was diagnosed with a chronic liver condition 10 years ago. While she had been relatively stable since then, she did suffer regular bouts of pain. Samantha’s last attack left her crippled with excruciating pain that was getting worse.

“Her GP took one look at her and knew she wasn’t in good shape at all. We immediately called an ambulance,” said Nikki who, along with her daughter, live in Hobart, Tasmania.

Interstate travel decision, Hobart to Melbourne

 

Doctors at the Royal Hobart Hospital discovered Samantha, an IT manager, had developed sepsis and a liver blockage. She ended up in the intensive care unit.

Two surgical procedures later and doctors were still unable to clear the blockage and fix the damage. It was decided that Samantha needed specialised care at a larger specialist hospital. That was when Samantha and Nikki planned next steps and their travel to the Austin Hospital in Melbourne was organised via an air ambulance.

“It was daunting, but we knew that when people are very, very ill, Melbourne was the place to be,” Nikki said. “Because she was such a unique case it was the best thing for her.”

medistays tasmania patient support ptas

Samantha (in blue), her twin sister Sheldene (left) and Mum Nikki (centre)

The search for accommodation in Melbourne

 

The idea of finding suitable accommodation so she could be near the Austin Hospital was playing on Nikki’s mind, but she found MediStays while searching on the internet. MediStays were able to find Nikki a place to stay only 300 metres from the hospital at a discounted rate.

“There was a grocery, pharmacy and restaurants all nearby,” Nikki said. ‘We had everything we needed.”

Nikki was grateful for the help MediStays offered in finding financial support for Samantha through the Patient Travel Assistance Scheme (PTAS).

“….. MediStays arranged everything for us which was fantastic. Every time we got in touch with MediStays, they went over and above what they needed to do.”

Crucial family support for interstate patient

 

Nikki is now taking turns with her daughter and son-in-law, flying back and forth from Tasmania to Melbourne, to ensure Samantha always has family around her. Nikki has extended the accommodation for another 14 days as her daughter recovers in hospital and doctors continue monitoring her.

While she would like her daughter home in Hobart as soon as possible, Nikki said she doesn’t want Samantha leaving until she’s ready.

“I feel so much better with her getting care in Melbourne,” she said. “Tasmania doesn’t have the equipment or the experience to deal with some cases and Samantha is an extreme case.”

Next steps, awaiting a life-saving liver transplant

 

Nikki touched base to share an update with us on Samantha’s progress and next steps for her care “Samantha signed consent forms for a liver transplant yesterday so she is officially on the transplant waiting list. We will definitely be using your services in the near future.”

Thank you so much to Nikki, Samantha and family for generously sharing your personal experience with Louise at MediStays.

We wish Samantha all the best for the coming months as she patiently awaits the gift of a liver transplant. Australia are leaders in organ transplantation and in 2019, more than 1600 Australians were the recipients of a life-saving organ donation. To learn more about organ donation, to register, or donate to this important cause, please visit the Australian Donate Life website or Transplant Australia

Booking Assistance

MediStays is here to support every Australian needing accommodation near hospitals.

There is no eligibility criteria for our free service – we assist patients, families, carers and staff.

Congratulations to Melbourne Awards Finalist & Community Champion Jake Coleiro!

Congratulations to Melbourne Awards Finalist & Community Champion Jake Coleiro!

The City of Melbourne have announced the finalists for the 2020 Melbourne Awards. These annual awards celebrate inspirational Melbournians and shine a light on Community Champions who have shown leadership, kindness and generosity during the during the COVID-19 crisis. We’re absolutely delighted to share that Jake Coleiro, MediStays Head of Partnerships, has been nominated as a finalist in the Melbourne Awards Digital Innovation category!

As a young Melbourne start-up and social enterprise, MediStays was founded to support patients and families travelling for medical care. MediStays Co-Founder Dr Sarah Everitt shared “When COVID-19 hit there was quickly a reduction in the numbers of country patients and families travelling for medical care. We received many calls from patients and families who needed to cancel upcoming appointments and surgeries. It was a very hard time for families, especially for those who had just endured the devastating bushfires”. COVID-19 and self-isolation had a big impact on healthcare and patients.  Many patients and families couldn’t stay in communal and patient lodges. Hospitals and rehabilitation units were rapidly working to safely discharge patients to free up beds. Frontline staff needed self-isolating accommodation”.

“…. the demand for MediStays completely shifted and we were inundated by requests for assistance”.

COVID-19 also had a major impact on the accommodation industry. “Hundreds of hotels and apartments quickly contacted MediStays to support our initiative” shared Sarah. “We were absolutely inundated with requests when Jake reached out to volunteer his services”. Sarah continued “Jake has all the qualities of a Community Champion. He brings to MediStays the perfect combination of expertise in ecommerce, an incredible work ethic and passion to make a difference. Jake has a huge heart. He literally worked around the clock volunteering his support for months on end”. Since April, Jake has achieved the output of an entire team on his own. He has onboarded more than 500 properties onto the MediStays platform, representing thousands of rooms and apartments.

Most significantly, Jake’s contributions meant that MediStays could safely and rapidly accommodate Melbourne’s most vulnerable community members. This included patients being discharged from hospital and people living with disabilities. “It was also such a privilege to support trusted Melbourne organisations, including Melbourne City Mission and Yooralla, to accommodate Melbournians facing homelessness” shared Jake.  

 “It’s a huge honour to be nominated in this year’s Melbourne Awards, but even more to be part of the MediStays team.” Jake Coleiro

Jake shares “As an ecommerce specialist my role at MediStays is to source and onboard trusted accommodation partners. My aim is to create seamless integrations for patients and carers to find suitable accommodation to meet their needs. It is a great feeling to have ownership of this aspect of MediStays. By focussing on our accommodation partners, I can thoroughly research the features they offer and ensure information is accurately shown on our website. This frees up our Care Navigators to invest more time with patients and carers.

I know it can be tough to find suitable accommodation, particularly for medical travel, so anything I can do to make the challenge a little bit easier is a real privilege”

Over the past six months, Jake has assisted onboarding hundreds of accommodation partners that are now bookable with MediStays. These accommodation partners ensure MediStays provides further depth in accommodation options for patients and carers. “My goal is to meet their budget, accessibility needs and location desires. MediStays also supports hospital staff and NDIS Support Co-ordinators to book trusted accommodation for their patients and participants. I am really passionate about supporting these staff in their roles” Jake shares. He continues “I know the accommodation industry is going through a tough time during this pandemic. To be able to partner with MediStays has not only assisted the patients and carers we support, but also these small businesses through challenging times. To me this is a win-win situation for everyone.”

Where to next?

MediStays is constantly in the process of further enhancing their online platform. Our goal is to make it easier for patients and carers to search and book suitable accommodation. Jake further adds “this aspect is really what I love about ecommerce. Understanding what is important to the guest and ensuring we can deliver it in a seamless fashion. Tech can be quite complicated and time consuming, however I know if we can continue to improve our platform it will further benefit people in crisis.” 

Congratulations Jake! Your contributions to MediStays have positively impacted the lives of Melbournians and provide a lasting legacy to Melbourne accommodation providers and the Victorian community. 

MediStays was delighted to recently appoint Jake Coleiro as Head of Partnerships.  If you are an accommodation provider and wish to support patients, carers and families with accommodation he would love to hear from you

How to claim IPTAAS: Isolated Patient Travel and Accommodation Assistance Scheme for NSW patients and carers

How to claim IPTAAS: Isolated Patient Travel and Accommodation Assistance Scheme for NSW patients and carers

MediStays was founded to support patients and their loved ones access the best care available. We achieve this by partnering with accommodation providers, including hotels and apartments, who provide discounted rates to our community.

To reduce the financial burden further, we link eligible patients and carers with financial support such, as the NSW Government Isolated Patient Travel Accommodation Assistance Scheme (IPTAAS).

Every year, thousands of patients and their loved ones travel from country NSW to receive specialist medical care. In addition to coping with the news of a serious medical illness, patients and their carers are faced with leaving their safe home environments to stay in busy regional or metropolitan cities, often for an unknown length of time.

The NSW IPTAAS is an important initiative that supports patients and their loved ones with the costs of travelling for medical care. Under this scheme, patients and approved companions can claim up to $120/night towards their accommodation and travel costs.

In this article we will discuss aspects of the Scheme and provide tips for patients and their loved ones.

Criteria for applying for IPTAAS include:

  • resident of NSW or Lord Howe Island
  • travelling more than 100km (each way) from home to the hospital or 200km cumulative over one week.
  • travelling to receive specialist medical care

Patients are ineligible to claim IPTAAS if they are

  • receiving financial support from other schemes, including Workers Compensation or the Repatriation Transport Scheme administered under Veterans Affairs
  • participating in Clinical Trials
  • travelling for allied health such as physiotherapy.

How much is the accommodation subsidy?

The subsidy varies depending on the length and location of your stay.

Commercial accommodation

Patients staying alone are eligible to claim

  • $43/night 1-7 nights
  • $80/night 8-14 nights
  • $105/night 15+ nights

Patients staying with a companion are eligible to claim

  • $60/night 1-7 nights
  • $105/night 8-14 nights
  • $120/night 15+ nights

Not for profit (charity) accommodation

Patients staying alone are eligible to claim

  • $43/night 1-7 nights
  • $65/night 8+ nights

Patients staying with a companion are eligible to claim

  • $60/night 1-7 nights
  • $85/night 8+ nights

If your stay extends into the next financial year, your nightly subsidy will restart from the lowest level on the 1st of July.

How far do I need to travel to claim IPTAAS?

To claim IPTAAS you will need to travel 100km one way (home to hospital) or 200km cumulative distance over one week.

Who can be an approved companion or escort?

An escort or companion is a person approved to travel with the patient. This may include your husband or wife, carer or the parents of children under 18 years of age.

Can the accommodation provider bulk-bill the costs of my accommodation?

Yes. Many of MediStays accommodation partners can bulk-bill IPTAAS on your behalf. This means that the hotel or apartment will pay the costs of your IPTAAS accommodation subsidy and you pay the out of pocket difference (if any).

Bulk-billing is available from stays of 3 nights or more. Please contact our team for further information.

Do I need to pay out of pocket accommodation expenses?

If your accommodation costs are more than the IPTAAS nightly subsidy, you will need to pay some out of pocket expenses.

For example, if a patient and companion stay in accommodation close to hospital at $120/night, they will pay $60 per night for accommodation. IPTAAS will subsidise the remaining $60/night. The subsidy will increase as the length of stays increases.

What if I stay with a relative?

Accommodation in private homes is covered at $20/night under the IPTAAS scheme.

Can I claim my public transport travel to the hospital?

Yes, public transport costs are covered under IPTAAS. GST is not covered. Keep a copy of your tax invoices and record details of your journey (dates) on the form.

Can I claim my petrol costs?

Yes, petrol costs are covered under IPTAAS. If you travel in a private car, you are eligible to claim 22 cents per kilometre. The distance is calculated using google maps from your home address to medical specialist address.

How do I contact IPTAAS?

The caring team at IPTAAS have offices across NSW and are here to assist you.

You can call IPTAAS on 1800 478 227 and speak with someone directly.

Please visit this link for a complete list of IPTAAS offices

Please visit this link for further information and links to online and paper application forms

At MediStays we are here to support you….

Supporting patients to access the best medical care is our mission at MediStays. We know how hard it is to travel long distances from home when you are feeling unwell. We also understand that the burden of travelling long distances in country NSW results in some patients delaying access to care or even not travelling at all. This was shown by researchers in NSW, who reported that patients living in NSW (and the ACT) were 10% less likely to travel for cancer care for every 100km they needed to travel (Gabriel, 2015). Not accessing life-saving cancer treatments is a heart-breaking situation, resulting in poorer health outcomes and shorter survival for these patients.

Helping our community to minimise the costs of travelling is an important part of our role at MediStays. We understand the financial stress of travelling for medical care and hope to support you with helpful and practical information to make your journey easier. We are also working with accommodation providers to bulk-bill your accommodation costs where possible. For further information and links to IPTAAS, please visit the MediStays Financial Support page.

VPTAS – The Victorian patients and carers guide to claiming accommodation subsidies

VPTAS – The Victorian patients and carers guide to claiming accommodation subsidies

In this month’s MediStays blog we are talking about the Victorian Patient Transport Assistance Scheme (VPTAS). This scheme subsidises the costs of travel and accommodation for Victorian patients that need to travel long distances for specialist medical care. Subsidies are provided to help cover the costs of staying in accommodation close to hospitals. Patients can also claim travel costs including private car and public transport costs.

 

 

Am I eligible to apply for VPTAS?

 

In Victoria, the main eligibility criteria for VPTAS is distance. Distance is defined from the patient’s home address to the specialist medical facility (hospital or clinic) or dental facility. There are two distance eligibility criteria:

 

  • People travelling more than 100km from home to medical care (one way)
  • People travelling an average of 500km over a week for one or more weeks.

 

To claim VPTAS you also need to be a Victorian resident. You also need to be travelling to specialist medical or dental care that is not available closer to home.

 

When you book discounted accommodation with MediStays, you can choose to tell us your postcode. This enables us to guide you on your eligibility for VPTAS and send you the link for the relevant VPTAS paperwork.

 

Who decides if I am eligible to claim VPTAS?

 Your medical specialist will need to confirm that you need to travel for specialist medical care. The doctor must be approved to practice as a specialist under Medicare Australia and their details must be included on the form. The form can be signed by the specialist or an authorised officer, such as a hospital social worker, practice manager, receptionist or nurse.

Please ask your medical specialist or staff at the clinic to assist you with this process or contact the VPTAS Office directly for further information. Once your form is submitted to the VPTAS Office, they will process your application and confirm your eligibility and reimbursements.

 

Am I eligible to claim the accommodation subsidy

If you are eligible to apply for VPTAS you can claim the accommodation subsidy during your stay. You will need to stay in commercial accommodation (registered business with an ABN)

 

How far do I need to travel to claim PATS?

To claim VPTAS you will need to travel 100km one way (home to hospital) or 500km average over one week for one or more weeks (home to hospital).

 

Who can be an approved escort?

As escort is a person approved to travel with the patient. This may include your husband or wife, carer or the parents of children under 18 years of age.

 

How much is the accommodation subsidy?

Patients are eligible to claim $49.50/night (incl GST) accommodation subsidy.

Patients travelling with an approved escort can claim $99/night (incl GST).

If you are an approved escort for a patient admitted to hospital you can claim an accommodation subsidy of $49.50/night (incl GST).

 

Is there are minimum stay to claim the accommodation subsidy?

No, VPTAS entitles you to claim all accommodation costs, including one-night stays.

 

Do I need to pay out of pocket accommodation expenses?

If your accommodation costs are more than the VPTAS subsidy, you will need to pay some out of pocket expenses. For example, if a patient and escort stay in accommodation close to hospital at $140/night, they will pay $41 per night for accommodation. VPTAS will subsidise the remaining $99/night.

 

What if I stay with a relative?

Accommodation in private homes is not covered under the VPTAS scheme.

 

When my husband is admitted to hospital can I claim the accommodation subsidy?

Yes, if you are an approved escort you are eligible to claim the accommodation subsidy. For example, you may drive your husband to the hospital and stay nearby until he is discharged. You are eligible to claim $49.50/night accommodation subsidy in this situation.

 

Can I claim my train travel to Melbourne?

Yes, VPTAS covers public transport costs. Keep a copy of your tax invoices and record details of your journey (dates) on the form. If you are eligible to travel on V-Line for free, please state ‘V’ in the transport type.

 

How about petrol costs – can I claim these?

Yes, VPTAS covers petrol costs. If you travel in a private car, you are eligible to claim 21 cents per kilometre. The distance is calculated using google maps from your home address to medical specialist address. You do not need to provide tax invoices for petrol costs.

 

Are there any other costs?

You will need to pay the first $100 out of pocket costs in a treatment year. A treatment year starts from the date of the first appointment with the medical specialist. This fee is waived if you are a primary card holder for the Health Care Card or Pensioner Concession Card.

 

Can I claim VPTAS if I am part of a clinical trial?

Participation in some clinical trials will deem patients’ ineligible to claim VPTAS. Please discuss this with your medical specialist if unsure. 

Do I need to keep a diary of my travel?

Yes, please enter the details of your travel and accommodation on VPTAS form Page 2. Please see our examples for further information.

 

Helping our community to understand the PATS process is an important part of our role at MediStays. We understand the financial stress of travelling for medical care and hope to support you with helpful and practical information to make your journey easier. We are also working with accommodation providers to bulk-bill your accommodation costs where possible. For further information and links to VPTAS, please visit the MediStays Financial Support page or VPTAS Office 

The experience of a kidney transplant – Neil and Yvonne share their personal story

The experience of a kidney transplant – Neil and Yvonne share their personal story

This week marks Kidney Health Week, and at MediStays we acknowledge the many Australians and their loved ones travelling to receive life-saving medical care for kidney disease. We are very grateful to Yvonne and Neil Hitchenor for sharing their incredibly personal journey with us.

Following years of chronic kidney disease and a kidney transplant, Neil has required ongoing care at the Royal Melbourne Hospital (RMH). The RMH is 3 1/2 hours from their home in Albury-Wodonga on the Victorian/NSW border. Neil’s wife, Yvonne, has a professional background in nursing and is an intelligent and passionate advocate of Australians living with chronic kidney disease. Several months ago, Yvonne called MediStays to arrange accommodation for herself and Neil. She generously offered to meet me the next time they were in Melbourne to share Neil’s experience with kidney disease and the challenges of travelling long distances for medical care.

So, last week Yvonne and I found a quiet place to meet at the RMH when Neil was at an appointment. Yvonne started by telling me “Neil and I lived on a farm with our three young sons at Coolamon, which is 40km north west of Wagga Wagga in the NSW Riverina region. “Our first experience with kidney related issues began in 2006 with our son Angus. He was 15 at the time and had an accident whilst competing in a local Motocross competition” shared Yvonne. It was established following scans that his kidneys were damaged in the fall which very soon became a medical emergency.  Yvonne continued “Scans at Wagga Wagga Base Hospital Emergency Department, indicated he had cystic kidneys and his kidneys were bleeding. We were seen by the on call consultant who questioned us as to whether or not Angus had been a sick child with any urinary problems. He then came straight out with

“…. you will need a transplant one day and will end up on dialysis”.

As a fit and healthy teenager, Angus was shattered as were his family.  At that stage, the family weren’t aware of kidney disease in their family. Angus fully recovered, and their busy lives continued. Then, three years later Neil was attending his GP for a routine visit, where it was revealed that Neil had particularly high blood pressure. Following some further investigation his GP revealed that Neil was in Renal Failure. “His  kidneys were functioning at less than 1/3 of their normal capacity and there appeared to be a functional problem with his entire urinary tract”. shared Yvonne.

Very soon after this, Neil was seen by a urologist, who performed a simple day procedure to establish what was going on. This situation rapidly unravelled, with a day procedure turning the entire situation on it’s head. Neil had a urinary tract and kidneys that were unlike anything the urologist had seen. “This in turn required further investigation in order to treat, so as to slow any further damage to his renal function” said Yvonne.

Over the next few months, Yvonne and Neil endured the ten hour ‘round trip to Sydney and back. In Sydney Neil had  specialist tests at the Royal Prince Alfred and Concord Hospitals. After one trip, they arrived home and Neil’s condition rapidly deteriorated into a urosepsis infection that resulted in admission to the Intensive Care Unit (ICU) and a four month stay at the Wagga Wagga Calvary Hospital.

kidney disease transplant dialysis medistays hospital accommodation

Yvonne shared how incredibly difficult this time was for Neil, herself and their young family. Firstly, the unknowns surrounding Neil’s diagnosis and prognosis. Yvonne found it extremely difficult to get accurate information from Neil’s doctors about his condition because they were simply in unchartered territory. Neil was admitted again to ICU a second time with urosepsis in 2013. This admission was particularly difficult on many so many fronts. Not only was Neil acutely unwell he  suffered from delerium, constant rigors and he also contracted several other infections.

Accurate  information became critical for the family as plans needed to be made for their business and personal aspects of their lives.  Neil had been in ICU for a month by this stage with no improvement.  In desperation, Yvonne asked his treating Psychiatrist  at the hospital where was this all heading. “I said to the pyschiatrist “no one seems to be able to give me any idea and I need to make important decisions relating to our business interests” shared Yvonne. She was told that while Neil may stabilise, he may lose one or both kidneys requiring an organ transplant, or he may even die. While the severity of this situation was devastating, Yvonne said

“I remember that even though this was such a shocking thing to hear, I also recall this sense of calm simply knowing what I was looking at”.

The psychiatrists frankness empowered Yvonne to prepare herself and their children for all situations. “It also helped me to make better plans for our future” said Yvonne.

One of the most difficult decisions Yvonne made while Neil was in ICU, was to sell his transport business. “Neil has spent years building his business and it was absolutely central to his self-worth and purpose in life” Yvonne told me. However, with Neil unable to operate the business into the future they made the decision to put the business on the market.

“It was one of the most difficult decisions I’ve ever had to make, and I knew Neil would be absolutely devastated”.

The business sold quickly but a huge part of our lives was now gone. The difficulties didn’t end there. Yvonne is a specialist nurse and was working with rural communities across the Riverina at the time. She had worked extremely hard in this role and appreciated the flexibility afforded to her by her employer when Neil was unwell. “I worked from the hospital and my employer was very flexible and adaptable”. Despite this, as Neil’s condition continued to decline, Yvonne had no choice but to end her 30 year nursing career and focus on her husband . “Neil experienced severe PTSD and psychosis along with the complications of End Stage Renal Failure. His world had been turned upside down” shared Yvonne.  “The pressure of our situation continued as Neil required dialysis in the Wagga Renal Unit 3 days a week” continued Yvonne.

“At that time we were driving 240km every week for Neil’s dialysis in Albury”.

Once their youngest son Hugh had completed Year 12, Yvonne and Neil decided to sell their family farm and move to Albury. They hoped this would simplify their lives and access to renal health care at The Royal  Melbourne Hospital.

“We knew the RMH was a centre for excellence in Renal Transplantation”

With Neil unable to work and Yvonne as his full-time carer, there was a need to apply for financial support. Yvonne was approved to receive a carers pension, however support for Neil was not so easy. “There was absolutely no way Neil could work when he was undergoing dialysis, however this in itself did not qualify Neil for a Disability Support Pension (DSP)” said Yvonne. Months of campaigning and seeking support from health and government departments, finally resulted in a review of Neil’s case. Yvonne shared “Neil needed to score 20 points to be eligible for the DSP. When he was formally reviewed, it was shown that Neil scored twice what was needed’.

 

Neil and Yvonne Hitchenor

Once they relocated to Albury-Wodonga , Neil and Yvonne undertook to real challenge of home heaomdialysis. Performing this treatment from home afforded them some flexibility in the relentless  requirement of having dialysis to remain healthy enough to qualify for an organ donation.

Yvonne also shared “together we managed Neil’s home dialysis, he was amazing. Let’s not forget  in doing this we saved the government tens of thousands of dollars and it was so hard to understand why financial support to survive was so hard to obtain. We were living in a situation we had never previously considered” said Yvonne. The couple were young, raising their family and working hard in their respective careers they had built over the years. To be suddenly living without employment, their beloved farm and a life-threatening illness was inconceivable.

Getting on with their new life, they received a call at midnight on the 5th February 2018 on Yvonne’s mobile phone. Neil had just started a dialysis and they initially thought “who would be calling us at this hour?”. Yvonne recalls “When I answered the phone it was the RMH informing us of a potential kidney donor. I was scrambling to think. All of these things were going through my mind; it was the most extraordinary feeling”. Neil was in shock.

“Neil sat there and said to me “I don’t think I’m ready…. someone is dying for this”.

“This is someone’s last wish for you to have this opportunity, you need to take it” replied Yvonne.

Needing to be at the RMH in Melbourne by 5am, Yvonne, Neil and their youngest son Hugh packed their bags and set-off down the Hume Freeway in the middle of the night. Smiling, Yvonne laughs and tells me “Could you believe, as we drove down Royal Parade in the dark, with the lights of the hospital in sight, the radio was playing Kiss “I was made for loving you”. The things you remember!

The next part of their journey sits very uncomfortably with both Yvonne and Neil. As we entered the hospital, two hospital staff actually said “congratulations” to us. Knowing the reality of an organ transplant, that another family had just experienced the devastating news that their loved one had died, Yvonne and Neil both found this very unexpected and confronting.

Arriving at the hospital at 5am, Neil was then wheeled into theatre at 11am.  This gave  their sons  and partners time to travel the long distance to Melbourne from Wagga to be together. “It really was a magical experience” smiled Yvonne.

“The magical experience of a second chance and we were all there to share it together”.

And, while they celebrated the gift of Neil’s kidney transplant, in the back of Yvonne’s mind she knew of the logistics ahead. Yvonne faced the challenge of finding affordable accommodation near the hospital, car-parking and meals. “I needed somewhere to stay when Neil was admitted, but also for six weeks once he’d been discharged” said Yvonne. Again, the couple were faced with the financial stress of maintaining their home in Albury and paying for inner-city accommodation. With the support of VPTAS, the family managed through this period and finally returned home. Yvonne shared “… at home we planted a beautiful magnolia tree in honour of our donor, it is our memory tree”.

“We hope that sharing our journey will help others.

“Kidney disease is a traumatic and devastating experience”

“While we treasure the gift of Neil’s kidney transplant every day, people need to understand the journey. Everyone’s journey is different” said Yvonne. She continued “We also want to share the wonderful support we have received and the incredible people we have met on our journey. If it wasn’t for Neil’s kidney disease and organ transplant, we wouldn’t have met these people”.

Angel Flight have been amazing and fly us to and from our appointments in Melbourne. It is also peace of mind knowing that MediStays is now here to support us to find accommodation. When you’re in the middle of this experience you just can’t google for support. It doesn’t work like that when your husband is being driven down the road in an ambulance at 3am. As carers, we need reliable and relevant options to support us”. Carers Victoria and Kidney Health Australia have also been places I could go to access advice and assistance and Emorgo House were wonderful support for accommodation.

Thank you to Yvonne and Neil for sharing this detailed and honest account of their journey with kidney disease. If you would like to share your personal experience of kidney disease, we would love to hear from you. Please leave a comment on our social media pages or on our blog post at www.medistays.com.au

At MediStays, we support patients and carers of Australians needing both short and extended stay accommodation to receive specialist tests, life-saving dialysis and organ transplants. If you need support to find accommodation while you or a loved one are visiting hospital, please contact our team at contact@medistays.com.au or (03) 9685 7553.